First his had a CAPD put in, under general anesthetic. You can refer to the kidney bc web site and the binder with pictures is all on there that they gave to us. This is a catheder that sits in his chest cavity and comes out just below his belly button. This has to heal for a month inside of him so it can be used for at home dyalsis later. Today a Central venous catheter was inserted into his neck via the Radiologist with a camera while under general freezing. ya not cool. J says it hurt. They said it wouldn't ..right.. This has aline that sticks out just below his right collar bone. This is how he started hemodyalisis today. They told him it wouldn't hurt and he says it hurt worse than when he hurt his hand. The nurses are all puzzled by this. He won't take Morphine cause it makes him vomit ...alot... he won't take t3s cause he has watched his dad react really bad to them. so...they finally gave him something else. He is so afraid of throwing up cause it hurst just to swallow right now. He says if feels like someone is pushing on his chest.
So now he does hemo dyalisis 3 times a week each treatment lasting 3-4 hours. Then when that is going good(?a week) we can go home and he can do it in FSJ. After a month we go back to PG and they make sure the stomach one is working and healed and then we spend a week learning how to use and work it. This is where we can do stuff at home. So... this is called peritoneal dyalysis. Basically we will be sent 6 weeks worth of fluid and he has to run a bag(40mins) thru his system 4 times a day. This is also in the book if you want to know more.
After a month of that then we get a new machine called a night cycle. Then he hooks up each night and it will cycle the fluid for 8 hours while he sleeps and he will unhook in the morning. So his days will be free. It is portable and we can go on our cruise in December. We met a guy who just went on a cruise and it can be done!
So... now this will carryon until he gets a kidney transplant. The waiting list for a kidney is 8-10 years. So they encourage people to find donors. They are actually training us on how to find a donor! They like family but can be anyone. To be a donor you don't have to be a blood match but there is various things. You contact a number we don't have yet and ask to be a donor for a person and they get your doctor to do the blood work and they see if you are a match. If you are it is in Vancouver and a 6 month prep min. The donor is 6 weeks recovery. Jason would be 3 months in Vancouver hospital but if it takes... normal! no more dyalisis! He will have meds and special diet but normal. Sounds easy! hahahah
3 comments:
I think I feel a bit sick!...L Mm
Thanks for the detail--I got food poisoning yesterday (walmart deli) and woke up this morning thinking wow, I'd feel one thousand percent better if I could just vomit. But alas I don't easily--Three times in my entire life. Yeah. So I read that entry, and it did the trick. Outside, trying to hold my hair and the baby out of the way, cleansing my digestive system out, all over the front yard, thinking, wow, I'm glad I read that blog. Feeling better now, thankyou J. I can only imagine how hard it is for you to be there in person, witnessing it all.
Also--you mentioned that all J's costs are covered up there. What about the donor? Do their medical costs get factored into Jason's bill, or are they separate? As an American, would they be covered?
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